“Short sense of competence questionnaire”: Validation study of the Italian version in a sample of caregivers of persons with dementia

Marisa Menghini, Rabih Chattat, Giovanni Ottoboni

Abstract


The sense of competence is a key factor in the success of care for people with dementia. In order to act with effective interventions, efficient measures are needed. The Short Sense of Competence Questionnaire is a suitable but little studied tool in the Italian context. After having translated and administered it locally, the questionnaire was studied along with scales to measure fatigue, distress, psycho-physical health, mood and self-efficacy of caregivers, and neuropsychiatric disorders of people with dementia. The analyses confirmed the original characteristics of the questionnaire and highlighted the reliability, internal consistency and concurrent validity. The performed translation is reliable and suitable for the contexts of prevention and intervention with the caregivers of people with dementia.

Keywords


caregiver; dementia; sense of competence; validation.

Full Text:

PDF (Italiano)

References


Adelman, R.D., Tmanova, L.L., Delgado, D., Dion, S., & Lachs, M.S. (2014). Caregiver burden: A clinical review. Jama, 311(10), 1052-1060. doi: 10.1001/jama.2014.304

Alzheimer Europe Office (2018). Alzheimer Europe – Publications - Dementia in Europe Yearbooks. Retrieved from https://www.alzheimer-europe.org/Publications/Dementia-in-Europe-Yearbooks

Apolone, G. (2001). Questionario sullo stato di salute SF-12: Versione italiana [Questionnaire on health status SF-12: Italian version]. Milano: Guerini e Associati.

Apolone, G., Mosconi, P., Quattrociocchi, L., Gianicolo, E.A.L., Groth, N., & Ware Jr, J.E. (2005). Questionario sullo Stato di Salute Versione Italiana [Questionnaire on health status Italian version]. Milano: Istituto di Ricerche Farmacologiche Mario Negri.

Bengtson, V.L., & Kuypers, J. (1985). The family support cycle: Psychosocial issues in the aging family. Life-Span and change in a gerontological perspective. New York: Academic Press. doi: 10.1016/B978-0-12-510260-5.50020-7

Bergonzini, E., Rebecchi, D., Sgarbi, C., Di Francia, D., Di Castri, V., Moscardini, S., & Oliva T., (2011). Esito dell’intervento psicologico sui familiari di pazienti affetti da demenza [Outcome of psychological intervention on family members of patients affected by dementia]. Ricerche in psicologia, 3, 417-431.

Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217-228. doi: 10.31887/DCNS.2009.11.2/hbrodaty

Campbell, P., Wright, J., Oyebode, J., Job, D., Crome, P., Bentham, P., … Lendon, C. (2008). Determinants of burden in those who care for someone with dementia. International Journal of Geriatric Psychiatry: A journal of the psychiatry of late life and allied sciences, 23(10), 1078-1085. doi: 10.1002/gps.2071

Carbonneau, H., Caron, C., & Desrosiers, J. (2010). Development of a conceptual framework of positive aspects of caregiving in dementia. Dementia, 9(3), 327-353. doi: 10.1177/1471301210375316

Censis (1999). La mente rubata: Bisogni e costi assistenziali della malattia di Alzheimer [The Stolen Mind: Alzheimer's Disease Needs and Care Costs]. Milano: Franco Angeli.

Censis (2016). L’impatto economico e sociale della malattia di Alzheimer: Rifare il punto dopo 16 anni [The economic and social impact of Alzheimer's disease: Redo the point after 16 years]. Retrieved from http://www.quotidianosanita.it/allegati/allegato1086448.pdf

Chattat, R., Cortesi, V., Izzicuppo, F., Del Re, M.L., Sgarbi, C., Fabbo, A., & Bergonzini, E. (2011). The Italian version of the Zarit Burden Interview: A validation study. International Psychogeriatrics, 23, 797-805. doi: 10.1017/S1041610210002218

Chattat, R., Gianelli, M.V., & Savorani, G. (2008). Group psycho-educational intervention for family carers. In E. Moniz-Cook & J. Manthorpe (Eds.), Early Psychosocial Interventions in Dementia: Evidence-Based Practice (pp. 186-197). London, UK: Jessica Kingsley Publishers.

Cooper, C., Katona, C., Orrell, M., & Livingston, G. (2006). Coping strategies and anxiety in caregivers of people with Alzheimer's disease: The LASER-AD study. Journal of affective disorders, 90(1), 15-20. doi: 10.1016/j.jad.2005.08.017

Cummings, J.L., Mega, M., Gray, K., Rosemberg-Thompson, S., Carusi, D.A., & Gornbei, J. (1994). The neuropsychiatric inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44, 2308-2314. doi: 10.1212/WNL.44.12.2308

Edwards, H.B., Ijaz, S., Whiting, P. F., Leach, V., Richards, A., Cullum, S. J., … Savović, J. (2018). Quality of family relationships and outcomes of dementia: A systematic review. BMJ Open, 8(1), e015538. doi: 10.1136/bmjopen-2016-015538

European Council (2019). G20 summit in Osaka, Japan, 28-29 June 2019. Retrieved from https://www.consilium.europa.eu/en/meetings/international-summit/2019/06/28-29/

Feast, A., Orrell, M., Russell, I., Charlesworth, G., & Moniz Cook, E. (2017). The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia. International journal of geriatric psychiatry, 32(1), 76–85. doi: 10.1002/gps.4447

Fortinsky, R.H., Kercher, K., & Burant, C.J. (2002) Measurement and correlates of family caregiver self-efficacy for managing dementia. Aging and Mental Health, 6, 153-160. doi: 10.1080/13607860220126763

Frisoni, G.B., Rozzini, R., Bianchetti, A., & Trabucchi, M. (1993). Principal lifetime occupation and MMSE score in elderly persons. Journal of Gerontology. 48(6), S310-S314. doi: 10.1093/geronj/48.6.S310

Gallagher-Thompson, D., Choryan Bilbrey, A., Apesoa-Varano, E.C., Ghatak, R., Kim, K.K., & Cothran, F. (2020). Conceptual framework to guide intervention research across the trajectory of dementia caregiving. The Gerontologist, 60(Suppl 1), S29–S40. doi: 10.1093/geront/gnz157

Gaugler, J.E., Roth, D.L., Haley, W E., & Mittleman, M.S. (2008). Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer’s disease during the transition to institutionalization? Results from the New York University caregiver intervention study. Journal of the American Geriatrics Society, 56(3), 421-428. doi: 10.1111/j.1532-5415.2007.01593.x

Gérain, P., & Zech, E. (2019). Informal caregiver burnout? Development of a theoretical framework to understand the impact of caregiving. Frontiers in Psychology, 10, 1748. doi: 10.3389/fpsyg.2019.01748

Grano, C., Lucidi, F., Crisci, B., & Violani, C. (2013). Validazione italiana della Revised Scale for Caregiving Self-Efficacy: un contributo preliminare basato su un campione di caregiver di familiari con Alzheimer [Italian validation of the Revised Scale for Caregiving Self-Efficacy: A preliminary contribution based on a sample of caregivers of family members with Alzheimer’s]. Rassegna di Psicologia, 30(3), 9-30.

Hadderingh, E., Kootte, M., & Velde B.P. (1991). Care for Demented Persons Living at Home. Groningen: Uitgave Dementie Onderzoek,.

Hébert, R., Lévesque, L., Vézina, J., Lavoie, J.P., Ducharme, F., Gendron, C., ... Dubois, M.F. (2003). Efficacy of a psychoeducative group program for caregivers of demented persons living at home: A randomized controlled trial. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 58(1), S58-S67. doi: 10.1093/geronb/58.1.S58

Hébert, R.S., Bravo, G., & Préville, M. (2000). Reliability, validity and reference values of the Zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia. Canadian Journal on Aging, 19, 494-507. doi: 10.1017/S0714980800012484

Katz, S., Ford, A.B., Moskowitz, R.W., Jackson, B.A., & Jaffe, M.W. (1963). Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function. JAMA, 185, 914-919. doi: 10.1001/jama.1963.03060120024016

Kim, H., Chang, M., Rose, K., & Kim, S. (2012). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68(4), 846-855. doi: 10.1111/j.1365-2648.2011.05787.x

Kurz, X., Scuvee-Moreau, J., Vernooij-Dassen, M.J., & Dresser, A. (2003). Cognitive impairment, dementia and quality of life in patients and caregivers. Acta Neurologica Belgica, 103, 24–34.

Lawton, M.P., & Brody, E.M. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist, 9(3), 179-86. doi: 10.1093/geront/9.3_Part_1.179

Lucidi, F., & Miraldi, M. (2006). Il caregiving nell’invecchiamento e nella malattia di Alzheimer [Caregiving in aging and Alzheimer's disease]. In R. De Beni (Ed.), Manuale di psicologia dell’invecchiamento (pp. 303-319). Bologna: Il Mulino.

OECD (2020). Dementia - OECD. Retrieved from http://www.oecd.org/health/dementia.htm

Ottoboni, G., Amici, S., Iannizzi, P., Di Pucchio, A., Vanacore, N., Chattat, R., & DEMCAREGIVER Group (2019). Italian revised memory and behavior problems checklist (It-RMBPC): Validation and psychometric properties in Alzheimer’s disease caregivers. Aging clinical and experimental research, 31(4), 527-537. doi: 10.1007/s40520-018-0995-9

Ottoboni, G., Cherici, A., Marzocchi, M., & Chattat, R. (2017). Algoritimi di calcolo per gli indici PCS e MCS del questinario SF-12 [Calculation algorithms for the PCS and MCS indices of the SF-12 questionnaire]. Retrieved from http://amsacta.unibo.it/5751/6/Ottoboni.et.al.SF12.pdf

Peacock, S., Forbes, D., Markle-Reid, M., Hawranik, P., Morgan, D.,

Jansen, L., ... Henderson, S.R. (2010). The positive aspects of the caregiving journey with dementia: Using a strengths-based perspective to reveal opportunities. Journal of Applied Gerontology, 29(5), 640-659. doi: 10.1177/0733464809341471

Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583-594. doi: 10.1093/geront/30.5.583

Pierfederici, A., Fava, G.A., Munari, F., Rossi, N., Baldaro, B., Pasquali Evangelisti, L., … Zecchino, F. (1982). Validazione italiana del CES-D per la misurazione della depressione [Italian validation of the CES-D for depression measurement]. In R. Canestrari (Ed.), Nuovi metodi in psicometria (pp. 95-103). Firenze: Organizzazioni Speciali.

Pillemer, K., Suitor, J.J., & Wethington, E. (2003). Integrating theory, basic research, and intervention: Two case studies from caregiving research. The Gerontologist, 43(Suppl 1), 19-28. doi: 10.1093/geront/43.suppl_1.19

Quinn, C., Clare, L., & Woods, R.T. (2015). Balancing needs: The role of motivations, meanings and relationship dynamics in the experience of informal caregivers of people with dementia. Dementia, 14(2), 220-237. doi: 10.1177/1471301213495863

R Core Team (2014). R: A Language and Environment for Statistical Computing. Vienna: R Foundation for Statistical Computing.

Reisberg, B., Ferris, S.H., de Leon, M.J., & Crook, T. (1982). The Global Deterioration Scale for assessment of primary degenerative dementia. American Journal of Psychiatry, 139, 1136-1139. doi: 10.1176/ajp.139.9.1136

Riedijk, S., Duivenvoorden, H., Van Swieten, J., Niermeijer, M., & Tibben, A. (2009). Sense of competence in a Dutch sample of informal caregivers of frontotemporal dementia patients. Dementia and geriatric cognitive disorders, 27(4), 337-343. doi: 10.1159/000207447

Siegert, R. J., Jackson, D., Tennant, A., & Turner-Stokes, L. (2010). Factor analysis and Rasch analysis of the Zarit Burden Interview for acquired brain injury carer research. Journal of Rehabilitation Medicine, 42, 302-309. doi: 10.2340/16501977-0511

Sörensen, S., Duberstein, P., Gill, D., & Pinquart, M. (2006). Dementia care: Mental health effects, intervention strategies, and clinical implications. Lancet Neurology, 5(11), 961-973. doi: 10.1016/S1474-4422(06)70599-3

Stansfeld, J., Crellin, N., Orrell, M., Wenborn, J., Charlesworth, G, & Vernooij-Dassen, M. (2019). Factors related to sense of competence in family caregivers of people living with dementia in the community: A narrative synthesis. International Psychogeriatric, 31(6), 799-813. doi: 10.1017/S1041610218001394

Steffen, A.M., McKibbin, C., Zeiss, A.M., Gallagher-Thompson, D., & Bandura, A. (2002). The Revised Scale for Caregiver Self-Efficacy: Reliability and validity studies. The Journals of Gerontology, 57, 74-86. doi: 10.1093/geronb/57.1.P74

Van der Lee, J., Bakker, T., Duivenvoorden, H., & Droes, R. (2017). Do determinants of burden and emotional distress in dementia caregivers change over time? Aging and Mental Health, 21, 232-240. doi: 10.1080/13607863.2015.1102196

Vernooij-Dassen, M. (1993). Dementie en Thuiszorg [Dementia and Home Care]. Amsterdam: Swets and Zeitlinger.

Vernooij-Dassen, M., Felling, A.J., Brummelkamp, E., Dauzenberg, M.G., van den Bos, G.A., & Grol, R. (1999). Assessment of caregiver’s competence in dealing with the burden of caregiving for a dementia patient: A Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice. Journal of the American Geriatrics Society, 47(2), 256-257. doi: 10.1111/j.1532-5415.1999.tb04588.x

Vernooij-Dassen, M., Kurz, X., Scuvee-Moreau, J., & Dresse, A. (2003). The measurement of sense of competence in caregivers of patients with dementia. Revue D'epidemiologie et de Sante Publique, 51(2), 227-235.

Vernooij-Dassen, M., Persoon, J., & Felling, A. (1996). Predictors of sense of competence in caregivers of demented persons. Social science & medicine, 43(1), 41-49. doi: 10.1016/0277-9536(95)00332-0

WHO (2017). Global action plan on the public health response to dementia 2017-2025. Retrieved from https://apps.who.int/iris/bitstream/handle/10665/259615/9789241513487-eng.pdf

WHO, & Alzheimer’s Disease International (2012). Dementia: A public health priority. Geneva: World Health Organization.

Zarit, S.H., & Zarit, J.M. (1987). Instructions for the Burden Interview. University Park: Pennsylvania State University.




Copyright (c) 2020 Rivista di Psicologia Clinica

Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 International License.

Documento senza titolo

 

 

Rivista di Psicologia Clinica. Teoria e metodi dell'intervento

Rivista Telematica a Carattere Scientifico Registrazione presso il Tribunale civile di Roma (n.149/2006 del 17/03/2006)

ISSN 1828-9363

https://section.iaesonline.com/akun-pro-kamboja/https://journals.uol.edu.pk/sugar-rush/http://mysimpeg.gowakab.go.id/mysimpeg/aset/https://jurnal.jsa.ikippgriptk.ac.id/plugins/https://ppid.cimahikota.go.id/assets/demo/https://journals.zetech.ac.ke/scatter-hitam/https://silasa.sarolangunkab.go.id/swal/https://sipirus.sukabumikab.go.id/storage/uploads/-/sthai/https://sipirus.sukabumikab.go.id/storage/uploads/-/stoto/https://alwasilahlilhasanah.ac.id/starlight-princess-1000/https://www.remap.ugto.mx/pages/slot-luar-negeri-winrate-tertinggi/https://waper.serdangbedagaikab.go.id/storage/sgacor/https://waper.serdangbedagaikab.go.id/public/images/qrcode/slot-dana/https://siipbang.katingankab.go.id/storage_old/maxwin/https://waper.serdangbedagaikab.go.id/public/img/cover/10k/